Now Viewing: Shared decisionmaking

Listen Up: Why Innovators Need to Listen to Consumers

May 23, 2013, 8:00 AM, Posted by Beth Toner

Beth Toner Beth Toner, communications officer

I recently spent the day at the MIT AgeLab, and it was an important reminder of why successful innovators in any field need to listen to the consumer.

I was there to participate in a roundtable discussion on engaging the “older” consumer online (much to my chagrin, I realized that I am in fact part of this demographic). Folks from a variety of for-profit organizations were at the table, along with MIT AgeLab staff conducting and supporting research in this area. I was the only person there from a philanthropic organization.

The presenter line-up was eclectic. To my delight, Sally Okun from Pioneer grantee PatientsLikeMe was there to share her perspective on how PatientsLikeMe helps patients make complex decisions about their health. Courtney Ratkowiak from Proctor & Gamble highlighted that company’s innovative efforts to reach women ages 55 and older who buy beauty products. (I was surprised to learn that most women 55+ don’t own a smart phone.) Mark Duffey, CEO of Everest Funeral Planning, showed how his company makes difficult decision-making easier by going out of his way to make prices clear. (Apparently, the three things women dread purchasing the most are financial services, cars and health care.)

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Bringing OpenNotes to Geisinger

May 20, 2013, 12:59 PM, Posted by Steve Downs

Doctor listening to man's breathing

In a post this week on the Kevin MD blog, Jon Darer, chief innovation officer for the Division of Clinical Innovation at Geisinger Health System, discussed Geisinger's decision to roll out OpenNotes to most of its physicians and patients.

Geisinger's approach highlights the choices that will be facing many health systems: The results of the OpenNotes study, published last fall, provide compelling evidence to go forward in general, but there is a need to be careful and thoughtful about how to do so. Different specialties and different patient populations have special circumstances that need careful consideration. And each institution has its own culture to be navigated. As more early adopters like Geisinger move forward, we'll learn more about how best to implement this practice and through that learning, make it more widely available. — Steve Downs

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500+ Geisinger Doctors Adopt OpenNotes

May 8, 2013, 8:00 AM, Posted by Steve Downs

OpenNotes: Health care leaders speak out

“Today, Geisinger Health System, one of the nation’s premier health systems, is taking an important step to expand OpenNotes. We hope other systems follow Geisinger’s lead to share doctors’ notes with patients, giving them information they can use to participate more meaningfully in their care." – Steve Downs

This excerpted post by Geisinger CEO Glenn Steele, MD, first appeared in October 2012, when results from the OpenNotes pilot were released. Geisinger was one of three health systems that participated in the study.

…As a health system CEO who also is a doctor, I believe it is an ethical imperative that our patients at Geisinger know everything that we know about them. And, I think it’s a logical imperative that if we can open up our medical visit notes to our patients, we’ll find out what they understand and what they don’t, so we can answer questions and work as partners to chart a path to better health.

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Why the VA Embraces OpenNotes

Apr 16, 2013, 3:15 PM, Posted by Pioneer Blog Team

Susan Woods, MD

Earlier this year, the Department of Veterans Affairs (VA) embraced OpenNotes, enabling more than 1 million veterans who currently have access to the VA personal health record to view or download their own medical notes along with their health record information via the My HealtheVet Blue Button. In a recently published study in the Journal of Medical Internet Research (JMIR), the VA's Susan Woods, MD, MPH, a longtime champion of open access and transparency, examined patients’ views and experiences with reading their health records, including clinical notes. The study is the first qualitative look at VA patients’ experiences viewing electronic records that included clinical notes and lab test results. Woods and her colleagues showed that viewing records and notes appeared to empower patients and increase their involvement in their own care but Woods says new communication skills will be needed to optimize the user experience.

In a recent interview, Woods discussed the power of open medical notes for patients and clinicians.   

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How Nurses Can Empower Patients Through Shared Notes

Jan 4, 2013, 12:36 PM, Posted by Pioneer Blog Team

By Jan Walker, RN, MBA, and Suzanne Leveille, RN, PhD, of OpenNotes

This is cross-posted from ADVANCE Perspective: Nurses

 As nurses, we've always been focused on the patient. Teaching patients about their health and advocating for patients are both incredibly important parts of the job. That's why we got involved with OpenNotes-an initiative that invites patients to review the visit notes written by their doctors, nurses, or other clinicians.

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